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cLIFE4life 
AVM Research

Signed in as:

filler@godaddy.com

  • HOME
  • F.A.Q.
    • What is an AVM?
    • Why now, why us?
    • Early symptoms of an AVM
    • Medical Research
  • Recovery & Rehab
    • Lifestyle
    • Food as Medicine
    • Organizations
  • About cLIFE
    • It's about "C"
    • Governance
    • Contact Us
  • DONATE

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Diagnosed with a brain AVM? Recovering from a brain hemorrhage?

A brain AVM diagnosis or a hemorrhagic stroke is devastating-to the patient and to the family. Early identification BEFORE stroke is frightening but likely lifesaving. 

Below are helpful resources that address common issues that arise within the brain AVM community that will help you in your journey.

Find out more

Symptoms & Resources

Medical Topics

Hereditary Hemorrhagic Telangiectasia (HHT)

Nose bleeds are common symptom of HHT, a rare genetic disorder that increases a person's chance of an AVM by 30,000! UPenn is one of two centers of excellence in the United States for HHT. 

Hereditary Hemorrhagic Telangiectasia (HHT) | Penn Medicine 

 Barrow-ASU Center for Preclinical Imaging | Barrow Neurological Institute 

Strabismus (Eye Misalignment) Diplopia (Double Vision)/Torsion Nystagmus

Visual Symptoms are common early indicators in AVM patients. Visual problems can be present even with 20/20 vision! That's because the brain controlling the eye muscles is typically affected as opposed to the eye itself. The visual issues can present as double vision (horizontal, vertical and/or torsional diplopia), eye bouncing or other lack of eye muscle control (blepharospasm, eyelid apraxia). Neuro-ophthalmologists and neuro-opticians should be consulted.

 Nystagmus | Johns Hopkins Medicine 

Ataxia and Motion Disorders

 What is Cerebellar Ataxia? | Barrow Neurological Institute 

ADHD, Autism, and Neuropsychology


 

Hearing loss and Tinnitus


 

The above is for informational purposes and does not constitute medical advice. Please consult your physician or dial 911 in emergencies.

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