A brain AVM diagnosis or a hemorrhagic stroke is devastating-to the patient and to the family. Early identification BEFORE stroke is frightening but likely lifesaving.
Below are helpful resources that address common issues that arise within the brain AVM community that will help you in your journey.
Nose bleeds are common symptom of HHT, a rare genetic disorder that increases a person's chance of an AVM by 30,000! UPenn is one of two centers of excellence in the United States for HHT.
Hereditary Hemorrhagic Telangiectasia (HHT) | Penn Medicine
Barrow-ASU Center for Preclinical Imaging | Barrow Neurological Institute
Visual Symptoms are common early indicators in AVM patients. Visual problems can be present even with 20/20 vision! That's because the brain controlling the eye muscles is typically affected as opposed to the eye itself. The visual issues can present as double vision (horizontal, vertical and/or torsional diplopia), eye bouncing or other lack of eye muscle control (blepharospasm, eyelid apraxia). Neuro-ophthalmologists and neuro-opticians should be consulted.
The above is for informational purposes and does not constitute medical advice. Please consult your physician or dial 911 in emergencies.
As we develop our content, there may be information that is available but has not yet been posted to the site. If you have a QUESTION or need ADDITIONAL INFORMATION, please contact us via chat or email
We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.
Looking back, what do you now think was an early sign of the AVM? Tell us your story, help our research.